Our son, Mikaere was born in October 2016 with Nonketotic Hyperglycinemia, an incredibly rare metabolic disorder which prevents him from processing glycine. It's pretty grim.
As his parents we want to contribute to the love and support the NKH community has given and so the foundation was born. We work with NKH charities to raise funds for research and with NKH families - providing information and support all in one spot.
The Foundation for Nonketotic Hyperglycinemia is sponsored by #teamMikaere