NKH Remembrance Day – 2nd November

To remember all the NKH kids that have passed, and to raise awareness for our NKH warriors still fighting.


Facebook Groups

NKH is a rare disorder spread across the globe. However, there is a strong community of NKH parents on Facebook. The NKH parents club is not a club anyone joins willingly, but once in we are fiercely supportive of our own.

Community Sites/Groups

Personal Groups + Blogs