The progression of NKH is tricky – because there are so many different mutations each child progresses differently. However, there are some anecdotal progression stages that parents have noticed.
These aren’t hard and fast progressions – there hasn’t been any research done into NKH progression and they won’t apply to every child. However, we know how as NKH parents the future and knowing what to expect can help as we come to terms with NKH.
So, we have a very loose NKH progression guideline. Please take it with a grain of salt.