Meet Mikaere

Mikaere was born Oct 2016 with Nonketotic Hyperglycinemia. We have spent countless weeks in Intensive Care, hospital and hospice. We’re lucky to currently be home with our little guy. He’s beautiful and well loved.

The Foundation for Nonketotic Hyperglycinemia

As Mikaere’s parents, we want to contribute to the NKH community that has supported our little family. We are determined that our little boy would make his mark on this world. But we struggled with the best way. How can we best serve the NKH community?

We considered a charity but felt that with the few strong charity’s dominating the NKH community it was better to partner with existing charities, allowing more funds to funnel into research than overheads.

Instead, we found information on NKH to be fragmented. There was no one place to go for cohesive information. So, we hope to eventually become that place, with The Foundation for NKH. In a past life before Mikaere Elly was a UX Designer. Sam works in tech, so between us, we have the skills and the determination.

Watch this space, we have plans.


If there is anything you’d like to add, or question or even just to say hey, we’re open and willing to add/change/discuss anything and everything NKH related. Email Elly – elly[dot]gedye[at]gmail[dot]com.

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Website + Blog:
Instagram: @teammikaere