Nonketotic Hyperglycinemia Conferences

There are typically two conferences a year: One in the US and one in the UK. Both are a chance for families to meet (a rare occurrence, considering the rarity of the disease and how far apart families are typically) and are a chance for researchers to share current (often unpublished) research.

If you get a chance to go to one, you should. Because the research is often unpublished, it’s unlikely to be shared digitally or online. There is typically a caveat to the researchers speaking, which is that the research not be shared.

Prof. Nick Greene in a Q&A. London, UK 2017.

UK Conference

US Conference

Past Conference Notes

These are saved in closed Facebook Groups. To be approved you’ll need to be part of an NKH family.

Past Conference Notes

These are saved in the closed Facebook Groups. To be approved you’ll need to be part of an NKH family.